We are one full year into our life with Celiac Disease and it's not going well. Celiac is a multi system, chronic, autoimmune disease that has over 200 manifestations. As my coping mechanisms weaken, I've noticed the development of three new manifestations. My guess is that these are undocumented symptoms of Celiac that deserve further study.
Profanity I was
raised in a strict, Catholic household and attended strict Catholic schools
which means I was never allowed to cuss. This past year has brought out a foul mouth.
For a while it felt really good and it did relieve some stress. But now the words have lost their healing powers, and I'm going through withdrawal. Who do you turn to when you are out of curse words? Well, really there is no one, but I see our pediatrician very often so I addressed the issue with him.
Bullet Bob
entered the tiny room that I'm way too familiar with. How familiar?
So familiar that we stopped playing "I Spy" two years ago because we all know every tiny
detail, including the red print on the strep test swab wrappers. "What's up Krussels?", Lightning Bob said as he entered the room. This is what came out of my mouth, after way too much illness and a completely wasted beach vacation. "Well Bob, the problem is, I'm out of
cuss words. Call it Defcon 5 or code
red...whatever....but I am in need of a new arsenal of curse words and I need
them to be really effective. So help me, to help these
kids because they need a mom who can cuss and
release all of my pent up anger and frustration. Do you have a pamphlet on that...next to
potty training, eczema and vaccinations? What ya got for me?". Bullet Bob sat and stared and then said,
"Well, I'm glad that you have a great attitude about it." I responded, "No, not really Bob! Cure or cursing, those are the options." After
writing out some prescriptions for my sick 13 year old, Dr.
Bob stood from his wheelie stool, embraced me in a hug, kissed my cheek and said,
"I'm sorry this sucks." I'm still in search of some good zingers and as much as I dislike the fact that I'm now a person who curses, at least I'm not stripping or shoplifting.
Dancing in Public Publix grocery store has a minimal amount of gluten free products but we
still walk in there if we are in need of a prescription, Dove chocolate is BOGO, or Kroger is out of Udi's bread. Besides a stellar pharmacist, Publix also has some pretty good shopping music. On this particular day, Gus and Mabel were busting a move in a sparsely
attended aisle as we made our way to the frozen food section. Yes, the Gluten free Udi's bread at Publix is frozen. I'm pretty certain that the same five loaves
have been in the freezer for the last six months. As we worked our way down the aisle, I was
hushing my children so that I could enjoy Goerge Michael's , "I Knew You
Were Waiting". And then I was
spontaneously dancing and singing...no, not lip-syncing, it was all out embarrassment. Gus and Mabel instinctually fell into their
roles as Solid Gold backup dancers. I
opened the freezer door and serenaded that expensive, freezer burned loaf of
Udi bread and sang, "I knew you were waiting, I knew you were waiting for
me." Let's be honest, this is where
weird bread goes to die and I rescued that puppy and then paid big bucks for the
"pretty crystals" of freezer burn that Mabel pointed out. I thought the song was so fitting. I quickly snapped back to stellar maternal behavior after a Solid Gold Dancer rammed my heel with a poorly steered grocery cart. This is one symptom that most likely will not subside. I'm cool with it.
Overactive Imagination Every few weeks I go to Whole Foods to get a few gluten free items that aren't carried at our local Kroger. The
parking lot immediately raises my heart rate. It's terrible and someone is
going to have to die in the name of highly priced organic fruit before someone
recognizes that even earthy, tree hugging folks have parking lot rage and all the lanes
should be one way. I always pass the
spots that are intended for the electric cars. One day I'm
going to snip the cord off of our old vacuum cleaner, duct tape it to the front
of my van and then park my 2003 Honda Odyssey in one of those spots and see if
anyone notices. Upon entering the store, I always work my way across the registers
looking for my favorite gluten free magazines....1)"Delight" -because you know this
lifestyle is delightful, 2)"Living Without" -because I love that reminder staring at
me on my coffee table and 3) "Gluten Free Living", and it's always clear that the fad
dieters have taken the whole supply which probably stood at ten.
My only other stop is in the dog food aisle. No
I don't have a dog, but that is where the gluten free cookies are found. I completely understand the placement of
these items. I can almost guarantee you
that there are well to do dogs in East Cobb that have been thrown an Annie's
Gluten Free Snickerdoodle cookie in error, and those same dogs may have
refused to eat them. I pick up Annie's snicker
doodle bunnies as well as the chocolate/vanilla bunnies. I'm always thrilled to see Kinnikinnick animal crackers in stock so I grab that as well. When you are sworn into the secret society of gluten free freakdom, they make you say Kinnikinnik five times really fast and teach you to say Udi's without making that "ew" face.
So back to my vivid imagination.... On one fateful day in the dog aisle, I became
overwhelmed at the presence of another person coming towards me. Literally I have never shared the aisle. I looked up and saw, none other
than Kim Zolciak, one of the Real Housewives of Atlanta! My brain instantly
became excited at the thought that Kim could have Celiac Disease and therefore jolt our disease into the forefront of mainstream America via dysfunctional
reality tv!! I pictured Kim and I hanging out in her mansion kitchen while her chef whips up gluten free snacks. I pictured Kim and I throwing a Celiac Disease Charity Benefit at her mansion and everyone would be wearing skin tight tank tops that reveal just the right amount of side boob and
on the front they would say, "I've Got Side Boob for Celiac." Kim is famous for her love of dresses that show just the right amount of side boob and lets be honest, Celiac is sexy, and sex sells so the t-shirts would be $30 a piece.
Why didn't it ever dawn on me that Kim could be perfectly healthy and
just shopping for expensive dog food?
I let my imagination get the best of me in all of two seconds. With her wig (that looks much better on tv),
her diamond ring bigger than my head, and more makeup than I've worn
collectively in my entire life, she was just there for dog food. My lapse from reality quickly ended and I
sauntered off to the check out where I was charged $28.00 for my three little boxes of dog treats...uh, I mean cookies.
All of the Celiac experts out there, um, I mean both of them, should be aware of these three new manifestations that I'm exhibiting. So if you witness my foul mouth, spontaneous dancing or whacked imagination, please remember that it's my Celiac Disease acting up and you shouldn't judge.